Showing posts with label cancer. Show all posts
Showing posts with label cancer. Show all posts

Friday, April 28, 2017

March's Challenge



Although content in February for the most part, there was something brewing that month – about which I was aware –  that would threaten to upend me in March.    The woman I call my ‘heart mother’ (see blog entry Feb 3, 2013), who has been a significant part of my life for 32 years,  was diagnosed with cancer. My emotional world imploded.   

For the first time since I left NYC in September, I did not want to be in Batavia.  I wanted to be back in NYC. With her.  For her.  I experienced something similar when my mom was sick. In fact, I had sat with my ‘heart mother’ at the time and lamented – I just want to be there (Batavia) with her (my mom). Being at work all week was an interference.  I wanted the weekend to come and I wanted to go to mom.  Nothing else in my life would get accomplished. It didn’t matter. I felt I was in the right place when I was with her. Shopping, doing laundry, or cleaning, helping with my brother, fixing what she felt like eating, sitting for long hours in silence or being an amicable companion when she felt like talking….that was what I wanted to do, where I found my purpose, and what helped keep my anxiety at bay.   

My ‘heart mother’ was having her own struggles. I called her daily to see how she was doing. Terrified of doctors and surgery, she was at times, vague. Without body language or close physical proximity, I felt panicked and frantic. She didn’t really want to know what was going on inside her body. But I did. Our opposing “needs” clashed and many times,  I would hang up gripped with fear and confusion.  It carried over to my daily life. I started finding it very hard to concentrate, very challenging to “be where I was”. My stomach churned much of the time and I lost my appetite. My heart did double flips. I was often close to tears for no good reason.  

I knew I had to get a grip. I struggled to not make what was happening to her all about me while trying to remain conscious of what I was feeling.  I was scared at the prospect of possibly losing her, angry with her for not taking care of herself, and filled with dread and sadness about the choices that she might have to make and the pain or suffering that she might have to endure. But I didn’t want her to have to deal with any of what was going on in my head while I was working it out.  She had enough on her plate and did not need to be taking care of me.  Still, she had always been the person I turned to in difficult times, and now I didn’t have that option. I felt very alone.

She allowed me to accompany her when she met with the surgical oncologist and for that, I was grateful.  I made my first trip back to NYC since the new year began.  Going gave me a direct pipeline to solid and complete information, which I craved. Leaving afterwards, she asked me if it was “too much information.” I assured her that it was not – I was feeling a little bit of ‘been there, done that’ because of my experience with my mom. I was internally adamant that I wanted to be there for her whatever it took. She had been there for me and now she would need support. I was up for it.  It was a very long three weeks between that visit and the scheduled surgery at the end of the month. 

She was subjected to further testing during that time, and although in hindsight, I realize she did the best she could at keeping me in the information loop, I just felt stone-walled and dismissed. I struggled to stay home, to continue living my life, and not run to her in NYC. There really wasn’t anything I could “do” and it was just a waiting game.

Sunday, May 15, 2011

A Private Holiday Between Mother and Child

I expected to miss my mom the most during the winter holidays. After all, holidays were a BIG DEAL, not only when I was growing up but after I became an adult. In all my 53 years before she died, I never missed a single Thanksgiving or Christmas holiday with my mom. My daughter and I and my sister and her family always, always made the trek west and north to our hometown where delicious smells, fireplace warmth, and mother-spoiling awaited us.

What I didn’t expect was the emotional wallop I felt when my birthday came after she passed away. Certainly as a child, my birthday was treated as a special event. In western New York, where spring takes its sweet time arriving, my mid-May birthday often coincided with our first real taste of spring-like weather. The lilacs were opening, sweetly scenting the air, the big trees that dotted our yard were bright green with new leaves, and my favorite lilies of the valley were bursting in the space between the concrete steps leading to our front door. Each morning as I left the house to catch the school bus, I checked the progress of the lilies’ growth, crossing my fingers that by the time May 16 dawned, they would blossom.

Beyond the flowers, what I liked most about my childhood birthdays was the food because I got to pick exactly what I wanted to eat. For as long as I can remember, birthday breakfast was always Canadian bacon and Pillsbury frosted cinnamon rolls. As I’d watch mom pop them out of their cylinder and arrange the raw dough swirls on a cookie sheet, I would practically wriggle in delight at the prospect of their melt-in-my-mouth goodness a mere 18 minutes away. Twenty perhaps if you counted the time it would take to frost them.  My cake request at night was always angel food with mom’s homemade chocolate frosting. I don’t remember the main course – ever – but the day started and ended with sweet joy.

But once I moved away from home to the other side of the state, my birthday became just another work day. I celebrated with my daughter, usually still inviting the Pillsbury Dough Boy to breakfast. We’d go out for dinner, just we two, riding the bus and then the subway from our Queens’ apartment to the West Village and a little Italian basement restaurant called Carmella’s. We almost always chose the simmering and delectable manicotti while dessert was a fruit tart pastry, artfully topped with my favorite raspberries, blueberries, and strawberries. I could hardly wait for it to be placed in front of me. And if I had a weekend birthday, we’d plan to do something fun like shopping, riding roller coasters at Great Adventure Amusement Park, seeing a movie, or in later years, attending a Broadway show.

Sure, mom was always the first to call me in the morning to wish me a happy birthday, her voice full of love 350 miles away. She always sent a box of presents in the mail that arrived at least two days ahead of time, usually at work because she knew I’d be there to collect them. One year in the late 1990’s, she picked a bouquet of lilies of the valley from between her front steps, carefully placed them in water-filled plastic tubes florists use to keep roses fresh, and then carefully placed the plastic tubes upright in a wide-mouthed jar. Somehow she rigged her packaging so the lilies were protected on all sides from being crushed; everything was tripled padded so no apparent water leakage would occur and she expressed mailed them to me at work. I will never forget my complete surprise – no, shock – and gratitude as the heavenly smell of lilies of the valley wafted out of her highly creative packaging. I picked up the phone immediately – “You are amazing,” I laughed, delighted as I imagined her executing her plan.

There was one more birthday I would be in her company.  The spring mom had surgery for ovarian cancer, I spent my birthday with her in a chemotherapy suite. It was her second ever chemo session and it was an all-day affair. We packed our lunch at home in the morning and ate sandwiches together as she sat tethered to an IV, poison pulsing through her bloodstream. I joked with her urging that she visualize the poison munching on the errant cancer cells that remained in her body.  She kept saying that it was a terrible way for me to spend my birthday. I considered it an honor and said so.

I had three more birthdays before she passed away. Because I would have seen her for Mother’s Day the week before, travelled to her again at Memorial Day, and joined her for her June birthday, I stayed home for my own, resuming my usual celebratory activity with my daughter.  

So I was unprepared for the wave of melancholia that crashed over me my first birthday without mom. Except for the chemo year, I’d had probably thirty birthdays without her. Why did I feel like pulling the shades, crawling in my bed, and sobbing?  I had plans with my daughter for dinner and a show. It was a Tuesday. This was the norm. I wasn’t supposed to feel this way until Thanksgiving. But I was bereft. 

It was the same the following year and the next and the next. I’d wake up morose and it would linger all day. The days were pleasant enough – often lunch out with a beloved colleague, dinner out with my sweet daughter, a couple of great shopping blitzes, and Broadway plays every single year. The calendars I save as a record of my life document all that. Still forlorn lingered.

I was cleaning out a cupboard of books this year, part of my effort to de-stuff myself, when I came across my baby book. My mother documented my birth, noting that her labor began at 4:45 p.m. on May 16. She went to the hospital at 5:45 p.m., and I was delivered at 11:47 p.m. that same night. I laughed to myself thinking of her short labor – even then it seems I didn’t want to be too much of a bother. She wrote that she had a pudendal block as an anesthetic and that my birth was by axis-traction. Basically that means the doctor used forceps to drag me out into the world. We went home from the hospital six days later or so the baby book reports.

I pondered this in the days approaching my birthday. I listened to the tape I made of my mom talking to me the fall before she died. On the tape, she reiterated, as she had many times throughout my life, how much she wanted to have me. I was her fourth pregnancy over a ten-year period after marrying my father. She’d miscarried three times before a miracle drug of the times helped her to carry to term. I thought about how emotionally and physically intimate giving birth is. A birth is an event that is ultimately experienced only between a mother and her child. Others are there, maybe even in the room, cheering, supporting, and celebrating the big moment. But in the end, a birth day is a private holiday. I have one of those “a-ha” moments when the intellectual and visceral collide in understanding. I understand why I have felt so unfinished on the day of my birth. My sole (and soul) partner in our profound holiday dance is gone.    

Saturday, February 19, 2011

Mourning Dad

I listened to a father and his son on the subway recently one morning.  They were having a real conversation. Dad listened intently to his son’s opinion about something that had happened in school and asked thoughtful questions. It was a sweet moment and it made me feel sad.  I think about fathers a lot. Two friends, one from almost 30 years ago and the other in my current workplace, mourn the loss of their dads within the past year. Their sadness is palpable. They each had remarkable and very close relationships with their dads. I envy them. This past week was the 7th anniversary of my father's death. I remembered him on that day (February 15), but I do not miss him. This also makes me sad.

My dad, about whom I’ve written nostalgically (In Honor of My Dad, 10/15/10), and I did not have a genuine relationship. I spent my childhood yearning after him but he was wrapped up in his own world which consisted, besides work as an electrical engineer and owner of a large mobile home park, of membership in several fraternal organizations, being a ham radio operator, running for political office, starting a paint manufacturing business, overseeing the metamorphosis of an old school bus into a state-of-the-art motor home, starting a newspaper and functioning as editor/writer/photographer, and being the president of many things. Almost every night of my early youth, he would dress up in what my sister and I called his “monkey suit” to go to a meeting at the Masonic lodge. And almost every night, I would climb up into his arms and ask him when he would be staying home with us.  He always came home after we were sound asleep, and although my mother swore he never missed a night of coming in to kiss us goodnight, it doesn’t count when you’re unconscious.

When he was home, he was a lot of fun if he wasn’t lost in thought about his own endeavors. My dad loved having kids because it gave him a chance at a second (and third) childhood. From him, I learned to love roller coasters. He taught us to swim and water ski, and maneuver a go-kart.  He swung us so high in our lawn swing that he ran right under it as he pushed. He built us a magnificent tree house and then slept out under the stars with my sister and me and our friends.  

It sounds wonderful, I know. And some of it was. But what was missing was real engagement. There were no conversations. No heart to hearts. No dispensing of paternal wisdom, guidance of any sort (except “Go ask your mother”), or reassurance. His idea of engaging with his children consisted of an occasional, “What did you learn in school today” – which always felt like an unanswerable question. Opinions ventured often resulted in tears (mine). My father had a very short fuse. One memorable moment was when I proudly announced in the first grade that if I could vote for president I would vote for John F. Kennedy. Kennedy. My father’s name was Ken. In my mind, a vote for Kennedy was an endorsement of my father and I wanted him to know I admired him. Maybe that would please him. A staunch Republican, my father did not wait for my explanation about why I felt that way  – he just blew up at my stupidity at expressing a “political” opinion he saw as opposite to his correct viewpoint. I learned to be quiet but I didn’t give up. I tried to learn the Morse code in 3rd grade so he would think I was smart and want to teach me about his radio equipment. He drilled me on the dahs and dits which I struggled to memorize and got irritated when I made mistakes. He read books on hypnosis and past life regression. I read them when he finished, hoping we could talk about them. He played the piano. I played the piano and made it my mission to learn his first piano recital piece from his childhood. I was determined that he would notice me, value me, pay attention to me. I am nothing if not tenacious.

The nearest we came to a real conversation was my 21st birthday, which was two days before I was to be married. I hadn’t known the man very long – not even a year. He was much older than I and from a different world. The engagement was short and very stormy.  My father came to my apartment that day bearing a dozen yellow roses and said he wanted to talk to me. This was unprecedented and I was caught, unsure of how to be, embarrassed, and wanting to escape. We had had a huge fight about a boy when I was fifteen and I’d been enraged at his audacity for thinking he could suddenly assert his authority after being absent my entire childhood. Ever since that time, being alone with him felt torturous. He cleared his throat and told me that he knew the wedding was but two days away. He acknowledged that I’d had a bridal shower; the cake and flowers were set for delivery, and my dress had been picked up. However, he wanted me to know that if I wanted, if I felt it wasn’t the right thing to do, it would be ok to change my mind and not go through with it. He was acknowledging what I knew in my heart – this was not the right man for me. But years of silence and lack of real connection and trust conspired to keep me vigilant and defensive and I was simply unable to take in his words, let alone allow them to affect me. I assured him that getting married was exactly what I wanted to do. He looked at me dubiously, but said, "okay", and took his leave. The end. Almost.
* * * * *
In early January 2004, his doctor gave him 3 weeks to 3 months to live. He had cancer of the esophagus. He wasn’t ready to die. There was still so much he wanted to do, including winning a fortune on the horses. He wanted to teach me his carefully devised system of handicapping so it wouldn’t die with him. He ran out of time. I was with him most of the last 48 hours of his life. He was weak and in pain. My sister and I dripped morphine down his throat throughout his last night and whispered in his ear what a wonderful dad he’d been while his wife slept upstairs, exhausted from long nights of his restless activity. Morning came. He’d been quiet for a few hours so when his wife awakened, I went home to my mom’s to shower and get some breakfast. As I left, my dad aroused, opened his eyes, and waved goodbye to me. An hour later, his wife called to tell us he’d taken his last breath. I watched the funeral director and his son put my father in a body bag and take him away, feeling nothing. My sister and I planned the funeral service.  We made photo collages, wrote the ceremony and presided over the event, with dad’s favorite ragtime music playing in the background. He would have approved of his send-off.
* * * * *
I remember his death seven years later and feel nothing. But the 50+ year old loss? Ever present.

Friday, January 7, 2011

The (Reduced) Sugar Trial.... Just Don't-Just Don't-Just Don't

This has been a really, really hard week.

Back at work on Monday, there is candy all over the place. Everyone seems to be bringing in their gifts from home and I can appreciate that strategy. Beautiful boxes with individually decorated pieces and assorted other chocolates sit on the long, low file cabinet in our office suite where goodies tend to gather. All day long I take the route in and out of our suite that bypasses this cabinet.  All day long I say to myself, Just don’t-Just don’t-Just don’t.  All day long I feel anxious and blue. Mid-way through the afternoon, I send an emergency email to my daughter. “You wouldn’t believe the amount of chocolate around here. I’m having a really hard time.” She emails me back, “Me too. Candy all over the place here too, including jelly beans.” I groan. That would be worse. I could eat jelly beans by the million. I haven’t touched one in about two years. I know better.

Tuesday is more of the same. I wander over to my colleague, A’s office, and whine a little about all the candy. He looks at me sheepishly, “I know,” he says, “I had one piece.”  I admire his will power. Another colleague, M, tells me she’s been bypassing the candy-laden cabinet too. She’s trying to stick to my not-a-vow-but-a-tentative-plan-to-deal-with-my-sugar-addiction. Misery loves company.

I am still suffering on Wednesday. A carton of dark chocolate truffles cast under my desk catches my eye. I had forgotten it was there. I had not taken this gift home with me before Christmas because I knew its fate. The carton is tightly sealed. Several times during the day, I pick up the carton and fondle it. About the fourth time, my finger toys with the edge of the seal. I almost let it slip underneath, almost release the heavenly scent of dark, cocoa-covered chocolates, almost set myself up to eat every one just to get them out of the way. A voice from somewhere in my head appeals, “Just don’t-Just don’t-Just don’t.” I put the carton down. I walk the hall to the water cooler, fill my water bottle and drink drink drink. I tell myself there is only an hour left in the work day to endure.   

Thursday is a better day. I take a little plastic dish of raw baby carrots and another of hummus to work with me, along with my lunch. Perhaps if I keep myself more comfortably full during the day, it will be easier. I am usually ravenous by lunch time and my typical soup and yogurt just doesn’t always satisfy me.  I munch on the carrots in the mid-afternoon and ignore the chocolate underneath my desk. The chocolate on the file cabinet, thankfully, is gone.

A dear friend of thirty-five years sends me a precious gift via email. After reading my last blog entry [See The Route to Resolution-Just for Today, 12/31/10] she reveals to me, among other things, her life-long addiction to sweets and how she finally, finally addressed it. I share it with her permission. “I knew,” she writes, “if I said I could never have ice cream again, I would crack up or kill myself. So I said to myself, you may have ice cream any time you want. All you have to do is get in the car, go to Ben and Jerry's, and get one scoop.  Then you must come home.  Come into the house.  Hang up your coat.  Do some little chore.  If you still want another scoop you MAY have one.  Just get your coat on, get the car out, go back to the ice cream shop, get one scoop, and come home. Amazing results.”  

I very nearly cry as I read her words, I am so overwhelmed. My friend has been fighting cancer. She continues, “Of course, cancer has changed this problem, too.  I crave chocolate, because of serotonin, not the taste.  So I ration my chocolate.  Otherwise I do not care if I eat or not. Ice cream can sit in my freezer now and I sometimes end up throwing it out because it has formed crystals.  Hurts my depression-baby soul, but what is the alternative?” There is more. She writes me about her nail-biting and her shopping habit too, and I feel 100% understood. I am almost breathless at her generosity as my eyes, my brain and my emotions take in her words – over and over again.

Nights are slightly less difficult but only because they are short. Between a dance class, the gym, a client, and an appointment for an eye exam, I get home late almost every evening. I have no candy, cookies, other baked goods, or soda in my house by design. However, there are two almost-full half-gallons of ice cream in my freezer, the result of a weak, hungry moment and a sale at the supermarket over the holidays.  Between them, the two half-gallons feature coffee, chocolate, caramel and nuts. Similar to my friend, ice cream is a food group I doubt I could live without. 
   
I have been making salads nightly for dinner. Large filling salads with yummy but not bad-for-you items – assorted greens, tomatoes, cucumbers, avocado, raw mushrooms, artichoke hearts, black olives, cauliflower – that are delicious, but they are not ice cream. Ice cream has been my evening struggle.

On Tuesday night, my friend’s strategy for ice cream consumption floats to conscious awareness as I contemplate my freezer contents. I decide out of nowhere that I will allow myself two teaspoons of ice cream a night. Only two. This means I have to pay attention so I don’t miss the event. It seems to work. I stop after two and put the ice cream away. I only feel a little deprived.

On Thursday night, when I think one more wouldn’t hurt, I tell myself that if I give in to the craving now, I’m going to have to start this all over again. I believe the anonymous responder [see Comments from The Route to Resolution, 12/31/10] that eventually I won’t be drawn to sweets if I can just get over this hump. Sometimes repetition is comforting but not in this instance. I know for certain that I do not want to have first-week-resisting-sugar experiences more than once.